Last night I dreamed I was on a space ship that was headed one way for Mars. I panicked and freaked out because I didn't want to go on it. I wanted to go home. The people on the spaceship told me I can go back but then first I needed to go through the torture chamber on the spaceship. I saw a little sign that said TORTURE. I pressed the red light and stepped inside. Suddenly, a machine grabbed all my limbs and started pulling them apart. I felt the pain in the dream. I was then shoved into a hole that was too small to fit my body so I couldn't breathe properly and was being squashed. I again I felt this very real pain in the dream. This dream sounds short but it was incredibly dragged out. I just don't have the energy to put all the details.
I want to use this blog as a diary of my journey with nightmare disorder, and to perhaps help other people who are suffering from this horrible problem, which no one except the sufferers themselves will ever truly understand. Twitter: @nightmaredis
Friday, 19 September 2014
The Endocrinologist Results
I took a while to write this post since I wanted to calm down from the whole experience first. I was away in Hogsback at a conference for a week, during which I had an absolutely petrifying nightmare about men chasing me with sticks wanting to rape me, whilst chanting the whole time. I woke up by sitting up suddenly, to see my friend who was away with me shouting my name trying to wake me up because I had been crying in my sleep. It was 04h40 in the morning and that was it for my nights sleep, and I had 8 hours of conference activities to attend that day. So at this point I was really excited to get back to get to the endocrinologist for my results.
Monday came and I was filled with dread because I knew it was going to be bad news either way. Either, I'd be told I had some horrible condition, or I'd be told everything was fine and then still be left with no answers. Turns out is was the latter. The doctor slowly went through each thing that they had tested me for, which led me to believe they had found something because otherwise I thought she would start with ''great news, no problems on your blood work.'' But no. She slowly went through each thing. The only problems they picked up were that my Vitamin D levels are 18, they should be a minimum of 30. And in my diabetes test, the second sample of blood my sugar was slightly higher than expected but ''nothing to worry about.'' I literally fell to the floor sobbing. My doctor handed me a tissue and tried telling me it was good news because ''Cushings Disease in itself is a nightmare''. This didn't make me feel any better. I don't care what it is, I want to know what's wrong with me and I want to do something about it. She then asked me when I'm seeing my psychiatrist again, so I knew what she was really thinking. I left with a prescription for Vitamin D supplements, ran to my car so no one would see I was crying and once I got into my car I just broke down. It took me 40 minutes before I felt able to drive. I called my dad to tell him the results but had to call him back later because he couldn't hear what I was saying I was so hysterical.
So where to from here? I don't know. I honestly can't think of one more doctor I could possibly try. So this is why I was just so so devastated. Because I honestly don't think that I have any more options to try, and I am in a lot of debt with all these doctors bills. The initial endocrinologist consultation and then the follow up cost me R2400 and my medical insurance only gave me R425 back. Luckily they covered all the pathology.
It is an extremely scary thought that at 26 years old I am faced with living (if all goes well) another 60 years...with this nightly terror. Its hard to wrap my head around it, really. I don't know what I can do now. I know I will not give up in my search for answers. Even if it takes me my whole life, I will find the cause of this, so I can at least help someone else with it.
Monday came and I was filled with dread because I knew it was going to be bad news either way. Either, I'd be told I had some horrible condition, or I'd be told everything was fine and then still be left with no answers. Turns out is was the latter. The doctor slowly went through each thing that they had tested me for, which led me to believe they had found something because otherwise I thought she would start with ''great news, no problems on your blood work.'' But no. She slowly went through each thing. The only problems they picked up were that my Vitamin D levels are 18, they should be a minimum of 30. And in my diabetes test, the second sample of blood my sugar was slightly higher than expected but ''nothing to worry about.'' I literally fell to the floor sobbing. My doctor handed me a tissue and tried telling me it was good news because ''Cushings Disease in itself is a nightmare''. This didn't make me feel any better. I don't care what it is, I want to know what's wrong with me and I want to do something about it. She then asked me when I'm seeing my psychiatrist again, so I knew what she was really thinking. I left with a prescription for Vitamin D supplements, ran to my car so no one would see I was crying and once I got into my car I just broke down. It took me 40 minutes before I felt able to drive. I called my dad to tell him the results but had to call him back later because he couldn't hear what I was saying I was so hysterical.
So where to from here? I don't know. I honestly can't think of one more doctor I could possibly try. So this is why I was just so so devastated. Because I honestly don't think that I have any more options to try, and I am in a lot of debt with all these doctors bills. The initial endocrinologist consultation and then the follow up cost me R2400 and my medical insurance only gave me R425 back. Luckily they covered all the pathology.
It is an extremely scary thought that at 26 years old I am faced with living (if all goes well) another 60 years...with this nightly terror. Its hard to wrap my head around it, really. I don't know what I can do now. I know I will not give up in my search for answers. Even if it takes me my whole life, I will find the cause of this, so I can at least help someone else with it.
Monday, 8 September 2014
Kidnapped in Uganda
I have a friend who lives in another city who is in a wonderful marriage, they've been together 10 years and married for 4 and I've never seen a more in love couple before. They have a little daughter who is almost 2 and she is 7 months pregnant with a boy.
Last night I has a very disturbing dream. I dreamed that I went to see her and she was doing a TV interview and her and her husband were saying that their hope was that the baby wouldn't be born deformed. I was very confused but then slowly information came together. I heard that she had gone on a trip to Uganda and had been kidnapped by some group of pirates there. When they got to the prison (and footage of this was shown) a lot of the men were tied up and naked and were being repetitively raped by other men. The woman were being chased by men who were going to be raped to. My friend was there. It then dawned on me that this baby that she was pregnant with was not her husbands but one of her kidnappers.
Wednesday, 3 September 2014
The Endocrinologist
I went to see an endocrinologist yesterday. I was there for almost 2 hours. In short, she is concerned about 3 things. Thyroid function, possible diabetes and the possibility of Cushings Disease. Cushings Disease was the one she was most concerned about. She asked me a whole lot of medical questions and then gave me a fairly extensive physical examination. She has ordered a fair amount of pathology work to be done which involves me taking urine samples to the hospital for the next 2 days and then on Thursday evening I can't eat after 10pm, then at 8am on Friday I have to be at Pathcare, where they will be performing 4 seperate blood tests on me over the span of 2 hours, in between which I will have to drink glucose syrup on an empty stomach. I have a friend who has had this test before and said she felt really sick for the rest of the day.
This entire journey I have been really desperate for an answer, but I'm scared of this diagnosis. It would involve surgery, medication and potentially radiation. 15 in 1 million people have it. How crazy would it be if all this time I had such a rare disease. However, I have had so many doctors tell me that ''you have this'' or ''you have that'' that I'm trying not to think about it too much.
Of course last night I had repetitive nightmares about blood tests so I feel like I've already had them.
This entire journey I have been really desperate for an answer, but I'm scared of this diagnosis. It would involve surgery, medication and potentially radiation. 15 in 1 million people have it. How crazy would it be if all this time I had such a rare disease. However, I have had so many doctors tell me that ''you have this'' or ''you have that'' that I'm trying not to think about it too much.
Of course last night I had repetitive nightmares about blood tests so I feel like I've already had them.
Monday, 1 September 2014
Goodbye My Friends
This dream I had a while ago, whilst I was at the Boom music festival in Portugal. It was on my first night there and I was as happy as could be so I was so confused that I would have such a disturbing dream. Two of my best friends in Cape Town (I prefer not to mention names on my blog for privacy for my friends) came and sat me down and told me that they were going to be moving away to Namibia. I was really really sad about this because I see a lot of them and I was devastated that they weren't going to live up the road anymore. I said goodbye to them and off they went. In Namibia, they lived in a high rise apartment which somehow I could still see in my minds eye, even though I was still in Cape Town. I continued with my life but was very sad all the time that they were not around but I continued to be able to constantly see (in my warped dream state) this high rise apartment block that they were living in. One day, the apartment block slowly - like in slow motion - began to crumble to the ground. Slowly it fell, and somehow I knew that my friends were in there. As if to stick with the theme, I slowly started to try to scream in horror, but the scream wouldn't come out.
Whilst trying to scream in the dream, I managed to scream myself awake back into real life. It was just before 6am and I'd likely disturbed all the people in the tents around me. I opened the inside zip of my tent and just stared out at the party. I had to wait 2 hours for my friend to wake up at a normal time, whilst all I really had to contemplate was this dream I'd just had. I panicked because I still had 6 nights ahead of me at this party, knew that it was going to be taxing on my body between the heat, dancing, constant music and uncomfortable mattress and really stressed out about this being added to the mix too. Of course, the nightmares continued for the rest of the party, but this was definitely the worst one.
Whilst trying to scream in the dream, I managed to scream myself awake back into real life. It was just before 6am and I'd likely disturbed all the people in the tents around me. I opened the inside zip of my tent and just stared out at the party. I had to wait 2 hours for my friend to wake up at a normal time, whilst all I really had to contemplate was this dream I'd just had. I panicked because I still had 6 nights ahead of me at this party, knew that it was going to be taxing on my body between the heat, dancing, constant music and uncomfortable mattress and really stressed out about this being added to the mix too. Of course, the nightmares continued for the rest of the party, but this was definitely the worst one.
Subscribe to:
Posts (Atom)